Registration |
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Become
a Queensland Cerebral Palsy Register member in two easy steps,
and help us gather information that will guide research in causes, prevention,
effective treatment and service provision of cerebral palsy. |
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Step
1.Download
the PDF Consent Form to print out, fill in and send to the QCPR,
orcontact the QCPR and
we will mail a copy of the Consent Form to you. Your registration
cannot be included on the register until your consent
is received by the QCPR. |
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If
you have any difficulties with your registration, or questions
about registration, please do not hesitate to contact
us. A detailed description of the Gross Motor Function
Classification System can be found on our GMFCS
information page including illustrated descriptions of each
age group in PDF to download. |
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QCPR
Members will receive information and regular updates from the CP Register. |
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Information
collected by the QCPR is transferred into de-identified data*,
and then sent to the Australian Cerebral Palsy Register.
*De-identified data does not contain information which identifies individuals. |
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De-identified
data is also available from the QCPR to researchers, people with cerebral
palsy and their family/person responsible, policy formulators, the community
and health professionals. |
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All
outgoing data from the QCPR is de-identified. |
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The
secure online
registration and database are protected by two firewalls
at both the Queensland and Australian level. |
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